Thursday, March 5, 2009

Overdue Update

Let me start by apologizing for not updating my blog more often. I just haven't felt up to over the past few weeks, but here it goes!
My 25 radiation treatments to my right axillary finished up on Feb 20th, followed by a quick trip back to Pittsburgh for a routine dental appointment, then back to Phoenix for a follow-up with Dr. Kukunoor, my oncologist. His exam did not address my right axillary at all, but rather the area around my collar bone and neck. He had asked me how my breathing was and then went on to say that the last CT scan I had in January revealed two spots that caught his attention. One was a nodule on my right lung and the other was a spot on the right side of my neck, which is the opposite side of where the cancer was originally spotted. Dr. Kukunoor stated that the spot in my neck could be from swelling or could be something other, and the spot on the lung was unknown. He told me he wanted to wait 3 more weeks before having a scan to see if these two areas changed in shape or size. I told Dr. Kukunoor that I did not want to wait 3 more weeks and wanted to have a scan done as soon as possible. He obliged my wish and set one up which was conducted this past Tuesday. It was a scan of the soft tissue of the neck and a full chest scan. Dr. Kukunoor called me at work yesterday (Wednesday) to give me the results and he said that there had been no significant change to either area and also attributed the spot on my lung to a form of pneumonia most likely caused by aspiration of food particles and liquids. I asked him just to reconfirm if this was good news and he said "Yes". I then went on to tell Dr. Kukunoor of relapse of difficulty swallowing and major swelling of my tongue. He had no explanation for the tongue swelling but did say that I could probably use another stretching out of my esophagus as the scar tissue was probably constricting that area again. I called the Dr. Gelzyad the G.I. who did the procedure last fall but he was reluctant to do it until I get another Endoscopy from my new ENT Dr. Hinni of the Mayo Clinic. I called the Clinic and was able to get an appointment for Thursday the 12th of March and if Dr. Hinni gives me the go ahead I will contact Dr. Gelzyad to have the procedure performed and get some from relief from eating and breathing. My tongue has also become very sensitive to heat both in the form of temperature and spiciness and me eating has been reduced to mostly things that require minimal chewing such as pasta, macaroni and cheese, yogurt, pudding and jello's. Everything else is just to difficult because my tongue seems to be filling most of my mouth. I have seen some significant reduction in the swelling over the last two days so perhaps things will return to normal soon. That's pretty much it in a nutshell for now and I will probably post another update in about two weeks after I see Dr.'s Hinni and Gelzyad.