Monday, May 11, 2009

It's Final!

Well, after meeting last week with the Oncologist team from the Mayo Clinic, and going over the options available to me, I have decided once again to return to Pittsburgh to resume my care with the team at UPMC in Moon Township.
Once again my decision was driven mostly by the fact that I have no family support out here and it would be asking too much for family members to make periodic/rotational pilgrimages out here to get the support I will be needing.
The Mayo Dr's also saw that I had received my original treatment in Pittsburgh, and it was their assessment that wherever I begin my treatment, than that is where it should end. In other words they didn't want to start treating me and than hand me off to UPMC some weeks or even months after starting. They just didn't think this would be wise from a strategic perspective. Also, after this last week at work, I was able to come to the realization firsthand, that I am not nor probably will ever be 100% again and it wouldn't be fair to my co-workers for them to bear the burden that I would put on them by not being able to perform 100%. So as soon as the Mayo Clinic and UPMC are able to coordinate and agree on a start date for treatment, then that is when I will head home. I hope for that to be sometime this week. I've already packed most of what few belongings I have out here, and several folks from US Airways have graciously offered to drive my car back to Pittsburgh for me. This will take a lot of my Dad, as he and I will now be able to fly back and get home in 4 hours instead of taking 3 days to do the drive.
Eating and drinking continue to be problematic, today's weigh in found me to be below what I was when I graduated high school, some 30 years ago. I tipped the scale at 176.9, at graduation I was 178. Never thought I'd see that again!!!!!!!!!!
Also today I was speaking to a representative on the phone from Fidelity Magellan in regards to my retirement account when my voice became rather gurgurly. I went to clear my throat thinking I would just expel the usual amount of mucous, but it was a rather large amount of blood. It also came from my nose and trachea tube as well. Enough to where I was scared into calling the Mayo Clinic, because I didn't know what was going on. I hadn't eaten anything all day and this was shortly after the noon hour and had only had a few sips of cold water. The Mayo only returned my call once, going over the symptoms and asking if it had subsided, which by then it had. The R.N. with whom I had been speaking, looked over my chart from my last blood work and said she would discuss it with one of the Dr's and get back to me, but alas no one called back. So, maybe no news is good news??????? Sometimes I don't really know what to make of these folks. They have you fill out all these questionnaires, but when something like this happens, they do nothing. I've been afraid to eat or drink anything else for the rest of the day for fear of another session like that, but I did manage half a glass, (large glass) of iced tea, while watching the Penguins lose to the Capitals in overtime at my favorite sports bar, Gallagher's, here in PHX. So far no reprisals!
Tomorrow, I have three appointments with three different specialist at the Mayo Clinic in regards to the feeding tube. These are all labeled as consultations, although all three specialists are all from the same department. I'll say this, I'll be damned if I'm going to pay them three co-pays if they all three say the same thing. Each appointment is separate and they are all on the hour starting at 1:00 p.m.

1 comment:

Cousin Gregg said...

Tom,

Thinking of ya' Buddy -
It's apparent the road has been rough; your decision under the circumstances is wise; you'll have your Dad and Cathy close by, as well as your friends from your Pittsburgh days.

The Penguins redeemed themselves tonight - hope you had the chance to catch the game !

Hopin' and prayin'

Cousin Gregg